Neurocutaneous Disorders

Neurofibromatosis Program at UNC Health

UNC Health has a Children’s Tumor Foundation credited neurofibromatosis (NF) program. Most of our patients have NF1, but our providers also see NF2 patients. The clinic is located at UNC Hospitals in Chapel Hill and provides services to individuals throughout North Carolina and surrounding states.

Faculty participate in the NF Children’s Tumor Foundation meetings and participate in the Shine a Light NF Walk each year. The NF program at UNC Health was formed by Dr. R. Greenwood, and is currently co-run by Dr. Eric Creed and Dr. Soma Sengupta. Dr. Sengupta (adult) and Dr. Kram (pediatric) are both neuro-oncology clinical trialists, and both have run clinical trials for NF patients.

UNC Health has a long history of research, care, and treatment of neurofibromatosis patients. The UNC Neurofibromatosis Clinic opened nearly 50 years ago, and UNC researchers were the first to develop genetic testing for NF1.

Tuberous Sclerosis Complex

The Tuberous Sclerosis Complex (TSC) Clinic at UNC provides comprehensive care to individuals with TSC across their lifespans. UNC has been officially designated as a TSC Clinic by the TSC Alliance due to its excellence in clinical care and participation in TSC research.

For more information: Tuberous Sclerosis Complex